TEAM 22q


TEAM 22q raises awareness, support and funding for 22q11.2 Deletion Syndrome, a disorder caused by the deletion of a small piece of chromosome 22. The deletion occurs near the middle of the chromosome at a location designated q11.2. The mission of Team 22q is to raise money for education and awareness, research, and to establish a Family Grant Program.


Program Chair: Nancy Jo DiGirolamo | nancyjo@team22q.org



KIDS RUN FOR FUN & CELEBRATION

The RUN FOR FUN is a 1 Mile Walk & Run for kids from Kindergarten to 8th Grade. The event is planned and organized by a committee of kids who meet several times a year in support of their friend Jacob who has 22q11.2 Deletion Syndrome.  CELEBRATION occurs after the RUN FOR FUN and includes games, activities, music and awards ceremony.

Click here to learn more about the RUN FOR FUN.



TEAM 22q HERO

HERO participants register for local endurance events and raise money for 22q11.2 Deletion Syndrome education and research. TEAM 22q provides training support, marketing materials and fundraising tools for our HERO participants.

Click here to join TEAM 22q and become a HERO.


WHAT IS 22q11.2 DELETION SYNDROME

22q11.2 deletion syndrome is a disorder caused by the deletion of a small piece of chromosome 22. The deletion occurs near the middle of the chromosome at a location designated q11.2.

22q11.2 deletion syndrome affects an estimated 1 in 2,000-4,000 people. However, the condition may actually be more common than this estimate because doctors and researchers suspect it is under-diagnosed due to its variable features. The condition may not be identified in people with mild signs and symptoms, or it may be mistaken for other disorders with overlapping features.